Well, we made it to Michigan yesterday. Lauren had her ultrasound and saw Dr. Sonnenday. I think things will start looking brighter now.
We got to Michigan at about 12:30 yesterday and went straight to the CVC (cardiovascular center) for Lauren's ultrasound on her legs. We had a really nice technician that explained everything to us. I am happy to report that Lauren had no blood clots!!! Yippee!!
Lauren is supposed to walk as much as she can, but she was so tired from the ride up and the CVC was so far from where we parked, that she rode in a wheelchair. When I pushed her all the way back to the cancer center, I asked her at the elevator if she could walk the rest of the way and she said yes. So we parked the chair and got on the elevator. She walked to Dr. Sonnenday's waiting area with little problems. She does get out of breath quickly because she is carrying about 30 pounds of extra water weight since the surgery. It is so weird because her face and neck look so much thinner, but her body and legs below the waist are bigger!!
She sat and kind of dozed off while waiting to be called back. The nurse called her back and her blood pressure was still really low. I think it was 100/40. It was 80/40 in the hospital and she was really light headed. While we were waiting in the exam room, Sis called and asked where we were. She had finished up her work and was heading over from the children's hospital called Mott, where she was working this week. Sateesh, Dr. Sonnenday's surgical fellow, came in first to examine Lauren. He had assisted Dr. Sonnenday in Lauren's surgery and came to see Lauren most days when she was in the hospital where he lead rounds. He is the nicest guy, always smiling and happy. He informed us that he was flying out in about 20 minutes to retrieve a liver for a transplant. He removed the stitch Lauren had from her drain and I don't think Lauren felt a thing. He asked her a lot of questions about her swelling and medications she was taking. He said the oozing of her incision at the top was ok and not to worry about it. It was not infected and would be ok. The bottom half of her scar looks great and is really healing nicely. I'm sure they aren't too worried about the scar because it will be cut open in a few weeks anyway. Maybe one day, Lauren will let me take a picture of it. My Mom and Dad were shocked at how big it is.
Sateesh left and went to brief the big kahuna, Dr. Sonnenday. We are all so in awe of him, I'm sure we look like big dummies just sitting and staring at him. Haha. He is so easy to talk to and I have never heard one person at U of M say one thing bad about him. Every time any nurse or tech asks who Lauren's surgeon is and we say Dr. Sonnenday, they always say "He's the best." Every single time. He checked Lauren over and told her to keep taking the lasix and he will call her next week. If she loses weight, it is working, if not he will up the dosge again. He said other than her potassium being low and Wo being anemic, her labs look much improved. Her liver functions were all normal which is awesome. He said her hair could be falling out for numerous reasons. Stress from surgery or her liver regenerating are two reasons. One of my our friends wrote to me on FB and said after her liver surgeries, her hair fell out too. I was worried Lauren was developing ascites, which is swelling and fluid around the belly that has to be removed by paracentesis, which is basically sticking a tube in the belly and draining huge amounts of fluid. Dr. S and Sateesh both felt it was fluid from the surgery and not ascites. Thank God for that!! Lauren asked Dr. S why she had to have an MRI on the 28th and not a CT. If you follow this blog, you know how much she hates MRIs. He said it would give a better picture of the side they removed the tumors from in making sure no new tumors had grown and to make sure the two they removed were completely gone. It was a good enough reason for Lauren, so she quit her grumbling. Dr. S wants Lauren to have labs done again this coming week at Mercy so he gave us orders to take with us. Other than the fluid and the other things I mentioned, he felt Lauren was doing well and quite happy about things.
We decided to go for a late lunch after that. Sis and Bruce met us at Applebees. They have a 550 cal. menu that Sis, Wo and I chose from. They had steak and shrimp and I had steak. Bruce had buffalo wings. This was good for Lauren since she needs to eat a lot of protein. Too bad she only ate about 1/3 of it and was full. Bruce tried to eat the rest.
We said goodbye and were on our way back home. I stopped at a rest stop about 80 miles into our trip back home because I couldn't keep my eyes open and I knew Lauren should get out and walk. I got a big Starbuck's coffee and it did the trick. I was dancing in my seat all the way home!! Lauren was having a really hard time in the car. Every bump really hurt and her legs were killing her. I gave her an ativan to try and calm her down and she dozed a bit the rest of the way. She was so happy to get home. It is 10:30 this morning and she is still sleeping. Poor kid.
She hopes to start walking on the treadmill today to try and get rid of her extra fluid. I'm sure if she puts her mind to it she can do anything. We are hoping she will start feeling better and have a turn around this week. This has all been harder than we ever could have imagined. Thak you so much for your support. I will update you of anything new. Until next time...